Friday, 3 February 2012

Updates

Gracie's scans have been postponed once again.  Somewhat because those liver enzymes continue to be high however they feel that this is due mainly to the cold she had.  They are coming down alot but not back to normal.  Dr. Ron wants to now wait on the scans so that we don't get a "false positive".  That is the best layman's terms that I know how to explain it.  The other reason and more pressing reason is that we are once again caught in some political crap up at Children's.  Anaesthesia is now refusing to go over to do any PET scans at Foothills on children as they do not have the resources.  This I do understand as they have to send a team over and it is a four hour procedure of which most of it is spent sitting around and waiting.  So we will wait to see if the situation is resolved, if not then I think we will maybe request to go to Edmonton to get it done and see if we can get around all of this that way. 

The loss of Charlotte Amsing on January 17 brought me to my knees.  I found myself checking the Amsings blog at all hours so of the day and night, only to be told by my friend Mel who also lost her son Grant.  It seemed so ironic to hear it from her.  My heart bleeds for Allison, Rob and Yolanda.  I do know that Charlotte was a gift from Heaven.  And if I knew at all what to say to this family it would be that she was blessed with parents like Allison and Rob and a big sister named Yolanda who gave her the best of themselves with every breath they took.  There are alot of kids out there that don't get half that much.  I hope they hold their heads high and know that they gave everything they could to Charlotte and she had a better 3 years than some kids ever will ever see.  She will always remain in our hearts and memories, she was a bigger part of our journey than they will ever know.  Hop Hops and butterflies.

Gracie continues to thrive, she is hilariously funny and sings so loud it could make you pull out the ear plugs if it wasn't so cute, so all is good .  I have been invited to go back to work part time, and only for a few weeks until they find a replacement, but you know it feels good to know that people believe in you enough to say hey can you do this after two years away and drop a lap top in your house and say I feel confident in you.  It does wonders for your psyche. 
Life is crazy busy with all of the above and with the care of my Dad, who continues to decline in health.  He is in a good spot now, put his health continues to decline at a little bit of an alarming rate, so with Angela and Roy's help we try to bring him as much dignity and quality of life that we can.

We have been asked to be part of the Radiothon for ACH.  Which airs next Wednesday, Thursday and Friday.  I hesitated at first but after some great chats with some other Cancer Mom's I decided that it was time to tell our story.  Especially when I found out that all the equipment that was used to harvest Gracie's stems cells and do the transplant (putting them back) was all donor funded then I knew we had to add our small contribution where we could.  I just hope I can get through it without the "ugly" cry. We will be on Thursday the 9th at 10 a.m.  It airs on Q107 and Country 105.

I hope all is well with everyone.

Love the Sterks