Sunday, 6 March 2011

Things you can do to help

My friend Allison, who also has a 2 year old going through her own journey up at Children's once said when you take your sick child up to Children's you come home with 20 more children in your heart.  This is such a true statement.  As I mentioned before these kids have my utmost respect, us adults could learn so much about living by watching these children fight for their lives.  This being said we have the most amazing circle of people in our world and we could not do this without all of your thoughts and prayers, it means more than you think it does.  People have been asking what they can do so this is something you can do, in this week alone up at Children's I watched two to three kids be sent home not getting thier blood transfusions because they ran out of blood, so you can go to your nearest blood donor clinic, which you can find at http://www.blood.ca/, and donate some blood.  This doesn't matter if you are in Calgary, Vancouver, Toronto or anywhere as it will make a difference in someone's life. 

And for those who have been asking about marrow donations; Gracie's cancer has not to date been in her marrow, we did another marrow biopsy last Tuesday but we would be surprised if it did show up there now.  Gracie's cancer is in the fat cells of her skin, hence the term "subcutaneous".  This makes hers very rare, in fact she is one in only 18 cases documented in the world, and hard to watch as we do not have one tumour or bone marrow to follow.  The only testing we have is PET scans (positron emission tomography) which the only one in Calgary is at Foothills (Edmonton has 4 go figure?), which if anything on those come back "lit up", as they say, then we do a biospy on that area.  So the other thing you could do is if you had a few extra million lying around, you could buy the Children's their own PET scanner :), or lobby your MLA.

Gracie is having a good day today after a not so good night, but if you want to laugh try dealing with a toddler on steroids it is interesting to say the least.

Keep your thoughts and prayers coming, like I said they mean alot, and donate blood!

Love and our utmost thanks to all.


PS:  some pics of Thursday and Gracie getting her chemo...as you can see she finally got hair back, only to probably have it go again next week...

1 comment:

  1. What a little princess. Such a trouper. I put Gracie's pic up at my desk, so I can look at her every day, say a prayer and send tons of positive energy.

    Love you much.

    L.

    ReplyDelete