Wednesday, 6 July 2011

Not sure what is next?

So we finished our last round of radiation this afternoon and all went relatively well, if you discount late transport guys (why we could not just drive ourselves is beyond me), panicked nurses at Foothills and some lost test results.  All of that aside we are glad that part is over, now we are not sure what the next few weeks look like.  Tomorrow we put her stem cells back and every nurse and parent we see that has been through this is telling us they will be thinking of us tomorrow, so not sure how ugly it will be.  From what we have been told by the medical team is that it is much like a blood transfusion, so therefore I thought it would not be that bad, but this pit in my stomach is telling me otherwise.  We also know that Gracie is going to be quite sick starting about Friday and lasting God knows how long.  We also did not realize that she will be on a PCA (patient controlled analgesia) which basically means she will have morphine hooked up to her IV where we can "push the button" as they say.  So we are not sure what to expect going forward.  Gary and I have decided that until Gracie's levels are high we will be allowing no visitors out of respect for Gracie as she will clearly not feel well (who wants people around when you feel like crap?) and we don't want any more fevers or infections if we can at all help it.
Will keep you posted as time goes on, although we anticipate a long haul, I will write when I am up to it.

Once again thank you to all of you who are on this journey with us.

Love The Sterks

3 comments:

  1. Good luck you guys! Thinking of you in Edmonton. xo

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  2. The very very best of luck. We are all pulling for you and most especially Gracie. May all of these troubles to date become a blip in the road in the near future. A very big blip but blip nonetheless......Linda and William

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  3. Gracie, Christa, Gary, hoping that all goes well this week and in the coming weeks for Gracie. Keeping you in our prayers, thoughts each day.
    Love the bathtub photos of Gracie, she's adorable - what a smile. And yes she will question why you posted the photo of the "bathtub hair" when she is older, not the saran wrap around the tubes!
    Take care, much love to all of you
    Michelle, Nicole, Joe

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