So our roller coaster life continues, I walked in today to find Gracie racing around the unit on her bike (a green adopted trike that is on ward), now Gary and I had talked this morning and he said she was feeling better, but this was incredible. It is always so healing to me to see her acting and feeling well. We met with her Oncologist and he has no explanation as to why her fevers started and why her counts dropped and then recovered all on their own. As of today she has not spiked a fever in over 48 hours and her counts are rebounding. Why?? Nobody has a clue. Her bone marrow did show some small signs of the hemophagocytosis but no progression of the lymphoma so therefore we really are not that concerned about the hemophagocytosis as we hope that transplant will take care of this. She has once again managed to stump everyone here as we still have no idea what it was that brought her down for the last week. This, as you all can imagine, was not what anyone was expecting especially her medical team.
So yeah for us, we are off isolation and Gracie is naturally back in the fridge where she always seems to be when she is feeling good. So I really do feel as if God listened and we dodged a bullet. We are still not out of the woods as our first hope is that Gracie's counts continue to climb and she does not contract anything else between now and July 3rd as that is our new transplant date. Once we get there then we can look towards the light at the end of the tunnel once again.
Thank you to all that continue to ride this emotional roller coaster with us. Without you all this would be too much to bear.
Love
The Sterks
Give that girl juice, pudding, apples - heck whatever she wants in the world....give yourselves some too - and maybe a celebratory glass of wine - maybe the whole damn bottle....best news ever you guys.
ReplyDeleteSo very happy for this very good news. Made my weekend. Hang in there and we are wearing our seat belts for that roller coaster.
L&W