So I am not going to confuse you all with a bunch of medical terms therefore I will try to keep this as much in lay mans terms as possible. Just remember if it sounds confusing, it is. When Gracie was first diagnosed she had a syndrome called hemophagocytosis show up in her marrow. Now this can be caused by a few things, infection, genetic disorders and the like, and is often complicated by T-Cell Lymphoma. When combined with Gracie's disease it is quite serious.
Last Friday Gracie developed a fever and a rash for no reason as well as her counts dropped to almost zero on Sunday. Her Doctors are now quite concerned that the combination of these things may be due to the hemophagocytosis recurring. We are still holding out hope that they are caused by some weird virus and are doing all the tests to determine a virus and which one. However Gracie's fevers are still not subsiding. If we cannot get 24 hours fever free, basically we need her to have the next 24 hours fever free, we will have to put her under again and do another bone marrow aspiration which will take place on Friday.
Needless to say that our transplant has been put on hold indefinitely until we can find the source of these fevers.
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