Wednesday, 8 June 2011
So we thought we would be home
Gracie got home went to bed around 6. Then we got a call from Childrens about 1 am to bring her back in. She has some kind of crazy virus,,,oh shit. So off we go, however there r no beds, so the young doc says go to emerg... We laughed, really hard. NO! Get us a bed or we r not coming... Just a funny story...and a reminder to get an Advocate for ur health care. Bad bad spelling from my phone... Keep ya pOosted.
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Argggh.....hang in there you guys. We are thinking of you every day. And my dear sister is right. Do not beat your self up about trying to live a normal life and getting out there and having fun.....you all need to do that as much as you can. And I am proud of you for standing your ground and being Gracie's best advocate. In our experience it seems that only the cancer specialists truly understand what you are going through - sometimes most of the other medical community act like deer in headlights and just do not get it.....best of luck always.
ReplyDeleteLinda and William